Thursday, October 1, 2009

Taysen, River, Jackson, Auntie Mia and I went to Seattle for Taysen's pulmonary appointment with Dr. Carter. We went over our cold and flu routine/protocol and Taysen tried to do a PFT. Playing with the noseclip proved to be more fun and try as he might he couldn't quite follow all the directions so I'm not sure how accurate those results will be! He took it home as a souvenir.

He is hysterical when he is in a situation where he is 1/2 nervous. He just talks absolutely nonstop.. he tells jokes, he makes up rapsongs, he makes himself laugh and if he makes someone else laugh, that's the icing on the cake for my little man.

I was planning on the kids getting their flu shots today, but they didn't have them yet! Looks like I will have to drag them to the pediatrician for those, i was really hoping to get them over with. We will all be getting the H1N1 vaccination this year as well. If Taysen has been exposed to anyone w/ confirmed flu, or shows any cough/fever symptoms he will start Tamiflu immediately according to Dr. C. He does not want to take any chances. He was pleased with how well Taye is doing, and how much stronger he appears. He gave me a great reminder today not to let my guard down, saying that it will take only one bad cold and he will get into trouble in a hurry.
It is such a struggle for me to try and balance doing "normal" things and keeping our boy healthy. He is a social guy, and loves visitors. "it's a party!" he says. Usually, he is allowed out if he's in a pushchair/jogger and does not touch things. We all handwash 1oo times a day, and lysol the house daily. He is not allowed to be around people who are or have been ill, share toys with kids, share food/drink, kiss on the mouth or just be in "germy" situations. Due to the 2 flus that are out, we are going to be changing some things about how to keep him and River healthy. Unfortunately that makes for a looong winter but we will happily do anything to keep his lungs strong and healthy.

Also this week... we made a quick trip for Xrays on Taye's foot. He started screaming when the PT was stretching his foot. He cried in pain the whole way home, and by nighttime we couldn't even transfer him without tears. :( poor guy. Since he is at such a high risk for fractures, i decided to take him in to cover my bases. Thankfully, nothing showed up on the xray. He is still in some pain, and not able to tolerate standing in the stander at all, so hopefully in the next couple days he will be feeling better.