Over the past few weeks, Taysen got all caught up with the 4 doctors he sees at Seattle Children's Hospital. He has remained fairly stable. His spine is at about a 8-12 degree curve, and his right hip is coming out even more, but this is not a shock to hear. His range of motion all looks great, and the pulmo was happy with his air movement in his lungs. He has been a little extra floppy and tired at the end of the day lately, so we are going to set up another sleep study to check if any bipap settings need to be changed. And just in case my husband "forgets" he offered to do this sleep study with Taysen i have it in writing :) He also had labs done as much as he tried to keep it together, he just can't. He didn't say any bad words this time, but he did yell in the midst of an absolute tear filled meltdown.. "JUST DO IT ALREADY MAN!!!!!!!"