I dont know the exact total, but what I do know, is that over $30,000 was raised at the New Years Eve Gala. 1/2 for the GSF and 1/2 for Menkes research at the NIH. More than any of us hoped we would raise. The night was an incredible experience.
It was extremely uplifting to feel supported by the community. I felt like not only did we raise some money for 2 terribly underfunded diseases, we raised some awareness. Perhaps that is even more important? I know that some people ended up there for a fun NYE party and maybe didn't know or care about the why. But some of them left with a cute little boy's smile in their heads -- maybe even heard the words "SMA and Menkes" for the first time. I appreciated every person who came. Sometimes just "showing up" speaks VOLUMES to me. It shows you care and I loved seeing our supportive friends and family.
Thank you is not "good enough" to express how grateful we are to every person who gave of their time, money, services to make this event so successful. Specifically Trent and Carrie. for carrying out this vision into a reality.
I knew i should've written this right after the gala, but wanted to wait to get a better idea of the amount raised. Now i am afraid I don't have the right words to convey what a special night this was but I must not put this off any longer... please take a minute to read Baker's mom's journal recapping the evening...http://www.caringbridge.org/visit/bakerdemeyer/journal