I would like to encourage everyone to take 10 minutes to watch this video about a sweet little boy with SMA, and his amazing family. It gives a real glimpse into the life of SMA. I admire this family so much for being so open and transparent. Especially the dad. It is hard to describe if you haven't met SMA kids in real life.. they are simply amazing kids. They have such a spark to them. Inspiring ♥
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Taysen is our 7 year old ray of sunshine living with Spinal Muscular Atrophy type 2. He has a spunk and zest for life like no other and inspires everyone he meets. He has a huge imagination and a great sense of humor...he feels it is his purpose to make people laugh. Taysen loves to drive his powerchair at speed 5, watch movies, play with his toy animals and eat junk food.
River is our 5 year old little sweetheart. He has a sensitive soul, patient and protective of his brother. He is a huge blessing to our family, always ready to give and recieve a hug. He is sometimes called "Running River" as he is always on the go! River likes to play outside where he swings, climbs and gets dirty. He loves books, watching "The Berenstain Bears", and cookies & hot chocolate
Very good way to learn about this disease and Philly reminds me a lot of Taye. This is the second time watching it for me. Keep your tissues nearby.
ReplyDeleteWhat an incredibly strong presence Philly has and I am so impressed with how direct and honest about SMA's impact on their life.
ReplyDeleteThanks for sharing this!