I haven't gotten the full sleep study report yet, but Taye's pulmonologist did call me and said everything looked pretty good... no real evidence of obstructive sleep apnea so I'm assuming it was similar to the last sleep study (not worse = good) this is not uncommon for SMA kids to "pass" sleep studies because his oxygen levels stay good but he still needs support in taking deeper breaths.
I decided to let him have one night off a week of bipap. He was so stinkin excited, like it was Christmas! He chose Tuesday nights (because i told him on a Tuesday :) and he never forgets!
He also had an appointment with his endocrinologist. We are all thrilled that he had not gained any weight since his last visit with her! She asked him what he was doing, and he said he was on a diet. haha!!
Last night when I was rolling him over he reminded me (again) that he needed to wear appropriate shoes for P.E. tomorrow (lol) he is such a funny kid. Had to laugh at that one even at 3am.
|Taking Jackson for a walk|
another thing that made me laugh...we were reading a book that had a picture of a boy in a wheelchair, and he said "hey mom, that's text to text connections, because i am in a scooter like him"